4.30.2008
Respidol Run Around
Well, we're now utilizing the drug Respidol twice a day, along with Concerta and Lamictal. With the progression of these meds we are also noticing somewhat of a step backwards. I'm not positive, but Chris & I are watching like a hawk for anything other than the meds to be causing Aaron's new behaviors. Aaron seems to be having some "sensory issues" now, with not only his bladder control, but with painful stimuli as well. Also, when Aaron's meds have worn off, he seems to act even more Autistic and sometimes, mentally retarted. The doctor seems to think that this is "normal", however, we don't. We do remember before any meds were introduced & he never carried himself as he does now. It seems to us that all these medications create a "focused Aaron" for a short while, but then delivers back to us a child we don't really know. I'm truly looking forward to meeting with the other physician who is more in tune with kids with AS, unfortunately we are still on his waiting list...until this summer. BLAH! Until then, we will continue on the track we are already on. Oh how I wish there was a cure for Autism Spectrum Disprders...maybe not a cure so much, instead, a reason why...why Aaron? why our family? where did it come from? is it something we did? did something happen to him that we were unaware of? This type of ASD is so un-explainable! It is so frustrating for everyone involved! It's so difficult to explain to others, because Aaron looks so "normal" on the outside & he's so loving & gentle...we like to think of him as our little Incredible Hulk...we don't dare make him mad...Aaron isn't so sweet when he turns green & grows 10 ft tall & can take on the world! (at least in his mind) The most frustrating part is the fact that, just as the Incredible Hulk, Aaron can remember nothing that just occured during his tyraid! It's exasperating, but it has become our life, which we have adapted to. Aaron says he wants to be a "brain electrician" when he grows up so he can help other little boys and girls who have problems thinking straight....at least that's this week! Who knows what next week will bring...an infomercial host???
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1 comment:
I believe my son has ASD he too is very gentle and sweet until he becomes anger, mad or upset about something or someone. He claims not to remember what he did and feels confused, sad and afraid. The Doctor put him on
Zoloft 100mg. Geodon 40mg. Adderall 25mg all once a day this gave him the druged out look and made him sleep alot. Because it is summer I stopped the meds (I do have the legal right to do so) and I'm giving him B12 complex, Folic acids and Serotonin. He's 14yrs old so I have to deal with the fact that he is hormonally challenged :) you know what I mean. I read about the side effecrs from the other meds and I don't want him to have development problems. Also, some new disipline technics and a little of tough love. He is starting to realize this is not a game and I'm not taking it anymore.
Elena
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